Life, death, disability and the human

The Living Life to the Fullest project is a research project which seeks to forge new understandings of the lives, hopes, desires and contributions of children and young people with ‘life-limiting’ or ‘life-threatening’ impairments (hereby LL/LTIs).

The project enables disabled children and young people tell their own life stories through access to the arts. The children and young people involved are using the arts including painting, poetry, film-making and sketching to tell their stories. Their works are used to help raise visibility and awareness of the contributions disabled children and young people make to their families, schools, communities and civil society.

In the Living Life to the Fullest project we believe that you can’t do high quality research about young disabled people’s lives without including young disabled people in the process: making decisions, co-leading the project, undertaking fieldwork (collecting data), collaborating in data analysis, and writing, sharing and promoting the research and its findings. We are proud to say that The Co-Researcher Collective, a group of young disabled people who have committed to the project, is radically impacting the way research is typically carried out. The Co-Researcher Collective is a key part of our Research Management Team. It is important to us that our research project is as flexible as possible; participation and leadership can be shaped and adapted to fit around the needs and wants of young people. You can read about the Co-Researcher Collective here, and watch our co-produced short film Living Life to the Fullest: The Co-Researcher Collective (2018) here.

The Living Life to the Fullest project is led by iHumaners Dr Kirsty Liddiard, Professor Dan Goodley and Professor Katherine Runswick-Cole from the Faculty of Social Science’s School of Education. The research is co-produced with community research partners, Purple Patch Arts, DMD Pathfinders and Good Things Foundation. The three-year project runs until 2020 and has received £544,000 in funding the Economic and Social Research Council (ESRC).